Field Dispatch
Matt Connarton Unleashed 8-31-24 hour 1
Game Plan
World Radio Premieres from Club Paradise and Silicon Kong.
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Speaker 9: You cannot know what that little way.
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Speaker 10: Yeah? Yeah, yeah yeah.
Speaker 11: That is two radio premiere, so open this week's Matt
Speaker 11: Connorton Unleashed. That was the FM radio premiere of Cyber Jesus,
Speaker 11: the new single from Silicon Kong, and to open the
Speaker 11: show we played the American radio premiere of our friends
Speaker 11: from Across the Pond Club Paradise and their great new
Speaker 11: track what If These Days, which I absolutely love. And
Speaker 11: this is of course Matt Connorton Unleashed. We are live
Speaker 11: from the studios of w m n H ninety five
Speaker 11: point three f I'm and Glorious, Manchester, New Hampshire. Today
Speaker 11: is Saturday August thirty one, twenty twenty.
Speaker 5: Four and I Am not alone.
Speaker 11: Cool a little remix for you there of your your
Speaker 11: theme that was different.
Speaker 5: Yes, I kind of like it.
Speaker 11: Yeah yeah, but you did that remix. That's right. It's
Speaker 11: it's still uh it's Studio Killers, but it's so same
Speaker 11: band but featuring Kim Petris.
Speaker 5: Oh cool.
Speaker 11: So maybe that's who remixed it. I don't know, but uh,
Speaker 11: that's cool.
Speaker 5: I like it.
Speaker 12: Good Morning Sunshine and it just stopped for some reason
Speaker 12: because it heard my lovely voice.
Speaker 11: That's weird. It's still playing, but it's like there's no
Speaker 11: audio there anyway. Well that's definitely a remix. Yes, yes,
Speaker 11: so welcome everybody. Of course, we like I said, we
Speaker 11: opened the show with a couple of radio premieres, Silicon
Speaker 11: Kong and before that, Club Paradise, both great new tracks.
Speaker 11: We'll try to hit those again later in the show
Speaker 11: in the second and third hours today in case you
Speaker 11: uh you miss those, but really good stuff. Our first
Speaker 11: guest should be calling in in just a couple of moments, uh,
Speaker 11: filmmaker Charles Maddox, who has been on the show a
Speaker 11: couple times over the years, and of course he's got
Speaker 11: a documentary called a trial by fire, which we're going
Speaker 11: to talk with him about that. In the second hour,
Speaker 11: we have ever Felt who is returning to the program,
Speaker 11: Adam Steglitch, and I don't know if anyone else will
Speaker 11: be with him, but he did message us he is
Speaker 11: on Skype. They're from Chicago and we had them as
Speaker 11: a couple of years ago. I love their sound, really
Speaker 11: really great band. And then in the third hour, we
Speaker 11: have Dave Strong coming in and I think he's from
Speaker 11: Boston if I'm not mistaken, and.
Speaker 12: It may be coming with some company.
Speaker 11: We've got We've got We've got several tracks of his
Speaker 11: He's got a brand new single by the way, that
Speaker 11: h We're not gonna We're actually not going to play
Speaker 11: the new single that just came out because the new single,
Speaker 11: so you know, if there's bad words in a song,
Speaker 11: I often make radio edits, but I listened to the
Speaker 11: new single and it would have ruined the song if
Speaker 11: I'd made it radio edit of the new one, brand
Speaker 11: new It's called I Hate Joe King's Roommate. But he
Speaker 11: did send us some other tracks to play, so we
Speaker 11: have some of Dave Strong's studio tracks that I really
Speaker 11: look forward to've I became an instant fan as soon
Speaker 11: as I listened to him. But yeah, but I am
Speaker 11: curious to ask him about the new single. I hate
Speaker 11: Joe King's roommate because I'm curious to know who is
Speaker 11: joking and what is his roommate done to Dave Strong
Speaker 11: to elicit a song with so much F word in it,
Speaker 11: so much track. Well, it's a punk song, so it's
Speaker 11: not a you know, distrack is kind of reserved for
Speaker 11: hip hop. I would say, but but I didn't know that.
Speaker 12: I thought anybody could do well.
Speaker 11: But he's certainly the things that he says about this
Speaker 11: individual about whom the song is about, he certainly is
Speaker 11: dissing them. Oh, by the way, too funny thing. As
Speaker 11: we were listening to that Silicon cong tract, Cyber Jesus
Speaker 11: immediately thought, I don't know if you thought this that
Speaker 11: I could imagine him playing with Green Jello or Green Jelly,
Speaker 11: whichever you want to call them. I think he would
Speaker 11: fit right in with them. Of course, they were Tuesday
Speaker 11: night at Terminus in Nashua. A show that you have insane,
Speaker 11: the show that you helped put together.
Speaker 12: Actually that was insane, And I got to tell you
Speaker 12: you got to get down to Terminus to see a
Speaker 12: show period. But ye, see Green Jello.
Speaker 11: There was just oh amazing, absolutely incredible, incredible. Yeah, such
Speaker 11: a great time. And it's funny. I said to Eleanor
Speaker 11: at the end of the night as we were leaving,
Speaker 11: I said, I hope nothing got broken, or I said,
Speaker 11: I actually I was quite sure something had gotten broken.
Speaker 11: I said, I hope nothing important got broken during the
Speaker 11: show tonight. And she kind of shrug and said, well,
Speaker 11: if it did, we'll figure it out. You know, it
Speaker 11: was worth it.
Speaker 12: So I don't think anything. I don't remember anything becoming Yeah, I.
Speaker 11: Don't know, but no, but it was. That was a
Speaker 11: great time. That was a great time. And it's one
Speaker 11: of those things who it all started with. You know,
Speaker 11: we had them because they had played in Manchester yep
Speaker 11: at the beginning of the summer I think it was.
Speaker 12: And it did not start with me.
Speaker 11: Right well they so they they played, right, they played, Uh,
Speaker 11: they played at the Shaft Scheme.
Speaker 13: Yes, and then.
Speaker 11: Jesse, your your son had suggested because he had gone
Speaker 11: to the show. He was at the show, and he suggested,
Speaker 11: you see if they would come on the next morning
Speaker 11: on to here, which was all.
Speaker 12: I was planning on going to the show right told
Speaker 12: me about it and said, you know, you ought to
Speaker 12: see if these guys want to come in, and I said,
Speaker 12: that's a great idea. Yeah, so I reached out to
Speaker 12: him maybe two months before they came to New Hampshire.
Speaker 5: Yeah, and.
Speaker 11: That was a long shot too, so it's good that
Speaker 11: you went for it. The reason I say it was
Speaker 11: a long shot is usually if a band is going
Speaker 11: to do a radio interview in a particular market where
Speaker 11: they have a show because they're touring, they you know,
Speaker 11: usually the show, the radio show is before because the
Speaker 11: idea of going on the radio show is to sell
Speaker 11: tickets to the to the concert. So usually so I didn't.
Speaker 11: I was actually surprised they said yes because they were
Speaker 11: kind enough to come on and Bill mannspeaker, great guy,
Speaker 11: everybody from the band. They were kind enough to come
Speaker 11: on the morning after they had just played the show
Speaker 11: in Manchester or so, so that was really cool. Well,
Speaker 11: I'm just saying though, typically in the industry, when you're
Speaker 11: when you're doing when you're doing radio interviews, you don't
Speaker 11: usually go on to show the day after. So that's
Speaker 11: why I'm saying that was especially cool of them.
Speaker 12: To do that, absolutely, and they all came in.
Speaker 11: It was amazing.
Speaker 12: It was if you didn't see that it is recorded,
Speaker 12: of course, but not now.
Speaker 11: Yeah, no, no, no, but yeah, So that was But
Speaker 11: so that led to a conversation after the show, because
Speaker 11: you know that we talked for a few minutes after
Speaker 11: the show because they were our last guests of the
Speaker 11: day and.
Speaker 5: Bill.
Speaker 11: Bill said something about, you know we're going to be
Speaker 11: coming back through is there somewhere else we can play?
Speaker 11: And he wanted to offer a free con a free show, Yeah, which.
Speaker 12: Is pretty insane. Cool. Yeah, to do that and you
Speaker 12: get Terminus.
Speaker 11: At that point it was in your hands to get
Speaker 11: and I thought Terminus.
Speaker 12: Might be a great location. Reached out to Eleanor and
Speaker 12: they said yes. And I know they took very good
Speaker 12: care of Green Jellow because I will say Terminus knows
Speaker 12: how to treat their artists quite nicely.
Speaker 11: Absolutely, No, that was insane.
Speaker 12: That was awesome, grateful for Terminists to post it. It
Speaker 12: was an incredible evening. It was like having a private
Speaker 12: concert in a way. Yes, because it was limited. It
Speaker 12: was limited amount of people who could come. And I
Speaker 12: have never seen so many pool noodles in my life,
Speaker 12: not even at the.
Speaker 11: Pool right exactly exactly.
Speaker 12: No, No, that was awesome. That was definitely awesome.
Speaker 11: Excuse me speaking of Terminus too, of course your art
Speaker 11: has been hanging there.
Speaker 12: Yeah, and Spelfie came and sat down and did an
Speaker 12: interview with me, and it's a it's a really in
Speaker 12: depth interview. We talked for about an hour. We talked
Speaker 12: about the pieces that are have been hanging up in
Speaker 12: Terminus all month.
Speaker 11: We should tell people, Spelfiest part of the Midnight Creatives Collective,
Speaker 11: which of course Terminus is a part of, which is CRACT.
Speaker 11: But and we had them on the show just recently.
Speaker 11: Spelfie and Eleanor and Andre all came on the show.
Speaker 12: And every month they pick an artist to feature, and
Speaker 12: I was this one's artist, and they actually chose to
Speaker 12: have my darkest paintings that I had never actually put
Speaker 12: all together. So that was that was interesting to see
Speaker 12: all of those paintings together as a collection. Yeah, and yeah,
Speaker 12: kind of powerful to see that because it's a little
Speaker 12: jarring because none of them were They were all dark
Speaker 12: paintings for the most part. There's one that was maybe
Speaker 12: not so dark, but yeah, that was insane to see
Speaker 12: them all together like that.
Speaker 11: Yeah, yeah, absolutely so. Yeah, lots of good stuff going on.
Speaker 11: But yeah, that's up on YouTube, right, the interview that
Speaker 11: Stealthy did YouTube so people can watch them now.
Speaker 12: It's on YouTube, It's on my Facebook page, it's on
Speaker 12: the Midnight Creative Collector's page. You can also find links
Speaker 12: to it at gencoffee dot com. We might blog is
Speaker 12: posted yes j E N N C O F f
Speaker 12: ey dot com.
Speaker 11: Yes, yes, I do want to say hello to everybody
Speaker 11: to in the chat room. Let's see we have Jay
Speaker 11: Bellow from the band Chasing the Devil. Of course they're
Speaker 11: going to be coming on soon, right, I think are
Speaker 11: you working on getting them back on?
Speaker 12: I am waiting to hear respond.
Speaker 11: They've got a big tour that they're that they're going on.
Speaker 11: So very happy for them. And and actually the when
Speaker 11: they were on previously, when the single for a Beautiful
Speaker 11: Nightmare came out and the guys were on the show, Yeah,
Speaker 11: they were talking about that, how they were looking into, uh,
Speaker 11: possibly doing a tour and so very excited about that.
Speaker 11: So yeah, we do need to get them on, you know,
Speaker 11: even if they're even if they're out on tour, if
Speaker 11: they want to do a phone or something. Love those guys.
Speaker 11: But Andy Jay is such a great guy, always a
Speaker 11: big supporter of the show. And let's see, we also
Speaker 11: have Hope the Rapper in the chat room. Hello to
Speaker 11: our friend Hope the Rapper. We love him. And let's see,
Speaker 11: I got to look at more than one chat room
Speaker 11: now since I'm splitting the stream up to multiple locations
Speaker 11: because you can stream it on YouTube now too, I
Speaker 11: forget figured out how to do that.
Speaker 12: We are streaming live in many places.
Speaker 11: And our friend Bruce from Legion of Solas of course,
Speaker 11: great organization based in Connecticut who does a lot to
Speaker 11: promote the music scene as well. Bruce is in the
Speaker 11: chat room and he's in there pretty much every week,
Speaker 11: which is nice. And he says morning friends, and our
Speaker 11: first guest is late you hear anything from.
Speaker 12: Him active online but not hurt anything.
Speaker 13: Okay, Well, what we'll do.
Speaker 11: You know what I think I'm gonna do. I'm gonna
Speaker 11: call an audible here upon fully intended actually, so we'll
Speaker 11: see if maybe he's having a technical problem. But since
Speaker 11: our friend Jay is in the chat room, Jay Bellow
Speaker 11: from Chasing the Devil, and they are going on a
Speaker 11: big tour. I think we should take a break and
Speaker 11: play We did the world radio premiere for this actually
Speaker 11: on the show. We were the first ones to play it. Drowning,
Speaker 11: great great track, absolutely, absolutely, such a great band. Uh,
Speaker 11: let's give this a spin and then we'll come back
Speaker 11: and we'll uh, we'll figure out where we're going from here,
Speaker 11: and perhaps our guests will appear. We'll see what happens
Speaker 11: live radio. But hey gives us, ah, gives us an
Speaker 11: excuse to play some Chasing the Devil here.
Speaker 13: It is drowning, the New days a game.
Speaker 5: Through this, just this awesome time. Well, holding on to
Speaker 5: whatever saying?
Speaker 3: Is that.
Speaker 5: Count that.
Speaker 1: Streams rocksnails so si.
Speaker 4: Cop, that's lie, So come on, trust, come.
Speaker 5: Truck, feel coming Row.
Speaker 4: Trumps lie South, not no many things.
Speaker 5: I don't us to be.
Speaker 14: Small, don't want campers, camp small, Dona camp.
Speaker 13: Small so good.
Speaker 11: That is drowning the band is Chasing the Devil and
Speaker 11: we have with us now via phone. I believe our
Speaker 11: friend Charles Maddox is there.
Speaker 5: Charles, is that you?
Speaker 10: Hey, how's everybody doing this morning?
Speaker 5: Good? Good?
Speaker 11: Welcome, or I should say welcome back. You've been on
Speaker 11: with us a couple of times before over the years.
Speaker 11: I think the first time. The first time was jeez,
Speaker 11: it had to be at least five years ago. The
Speaker 11: first time you were on, I think you had had
Speaker 11: you put out the documentary about diabetes.
Speaker 10: Was that okay, yeah, yeah, yeah, that's been out.
Speaker 11: It's coming back to me now, yeah. Yeah. Well you're
Speaker 11: a busy guy. You do a lot of stuff. So,
Speaker 11: so welcome to the show on this Saturday morning. Jenny
Speaker 11: is here of course as well, and the subject of
Speaker 11: your newest documentary, Trial by Fire, is something that obviously
Speaker 11: Jenny is she can relate too, unfortunately, because it is
Speaker 11: about a very serious subject CRPS, complex regional pain syndrome.
Speaker 11: And let me ask you right off the top, Charles,
Speaker 11: what what was it that compelled you to make this
Speaker 11: particular documentary Trial by Fire.
Speaker 7: Yeah, you know it.
Speaker 10: My mother suffers from from CRPS, and I remember she
Speaker 10: had it probably about maybe about three two three years,
Speaker 10: maybe even longer, and I would go see her and
Speaker 10: I really didn't have any understanding of what she was
Speaker 10: going through, and she was was at a place where,
Speaker 10: you know, she would complain about the pain. Once again,
Speaker 10: I was ignorant to what CRPS was, so I would
Speaker 10: just say, well, Mom, maybe you should go to the gym,
Speaker 10: Maybe you should try to stretch it out. You know,
Speaker 10: you got to walk it out. You know, things like
Speaker 10: that that you know, really weren't going to help. And
Speaker 10: then one day I went over there. Now you know,
Speaker 10: she's a very proud Jamaican woman, and I was there
Speaker 10: one day and this was, you know, like I said,
Speaker 10: she was dealing with a lot of pain, but you know,
Speaker 10: she was still mobile and so on and so forth.
Speaker 10: And I remember her saying something about, you know, wanting
Speaker 10: to maybe not be on earth anymore. And I said,
Speaker 10: WHOA hold on a second, that that. You know, my
Speaker 10: mother talked like this, you know. So at that moment,
Speaker 10: I literally went online and went to YouTube and just
Speaker 10: started you know, looking up stuff and and online looking
Speaker 10: up stuff. And I just bumped into someone who I
Speaker 10: think had CRPS and it was real bad and they
Speaker 10: were talking about how bad it was and about suicide
Speaker 10: and things like that. And that's when I said, wow,
Speaker 10: you know what, I don't know what this is or
Speaker 10: what this is doing to her. I get it now
Speaker 10: because I saw someone else who was explaining it, and
Speaker 10: I said, you know what I've got to do something
Speaker 10: about this, and it was kind of like I wanted
Speaker 10: to kind of chronicle what she was going through. But
Speaker 10: through chronicling or trying to chronicle what she was going
Speaker 10: to go through or going through, you know, I had
Speaker 10: to kind of reach out into the community to say,
Speaker 10: you know, let me reach out and try to find
Speaker 10: other people who are dealing with this, because I want
Speaker 10: to tell this story, not just her story, but just
Speaker 10: overall and see what was going on with this condition
Speaker 10: called CRPS. And that kind of opened up the door
Speaker 10: and I met some people in Tampa Saint you know,
Speaker 10: I was living in Orlando at the time, so I
Speaker 10: met some people who were in Orlando area who were
Speaker 10: I have a kids of it, and you know, they said, hey, Charles,
Speaker 10: you know what we'd love to, you know, help you
Speaker 10: tell this story. And that's that's pretty much how it
Speaker 10: got started to really just wanting to see what she
Speaker 10: was living through, but then also met other people who
Speaker 10: were dealing with it as well.
Speaker 11: In terms of reaching out to other people who are
Speaker 11: dealing with it, was that, I mean, how challenging was
Speaker 11: it to find those people because CRPS, I mean, the
Speaker 11: average person probably has no idea what it is and
Speaker 11: and it's not always uh you know, as as you mentioned,
Speaker 11: easy to diagnose, and I mean, Jenny, how long the
Speaker 11: years before the years? Yeah, you know obviously. And the
Speaker 11: thing is too, it's it's such a conundrum. It's like
Speaker 11: when you have an illness that is rare. Of course,
Speaker 11: it's it's harder to diagnose because fewer medical professionals have
Speaker 11: seen that particular illness and there's a lack of research
Speaker 11: and whatnot because it's you know, it's not again, it's
Speaker 11: not something most people have heard of. You know, everybody
Speaker 11: knows what diabetes is, but the average person has no
Speaker 11: idea what CRPS is. So was it was that challenging
Speaker 11: finding these people?
Speaker 10: No, actually wasn't. The thing is is, you know, there
Speaker 10: are some some some great groups on social media, whether
Speaker 10: it's Facebook or whatever it may be. And the particular
Speaker 10: person that I ran into that was close to me,
Speaker 10: they had a great support group and also they knew
Speaker 10: a lot of other people, so they had resources from
Speaker 10: doctors to experts to uh, you know, hundreds of people
Speaker 10: that were following them, and that that kind of opened
Speaker 10: up the door that I found other advocates. Like at
Speaker 10: that that time, it was like Barbie Ingele, who was
Speaker 10: very vocal a few years ago. You know, she still
Speaker 10: lives about CRPS and pain, and it just started connecting.
Speaker 10: And because there wasn't much advocacy on it, the fact
Speaker 10: that this film was being put together was really you know,
Speaker 10: raising a lot of awareness. Now, they don't get it wrong.
Speaker 10: It wasn't it wasn't easy. They were. There are a
Speaker 10: lot of nights where, you know, at times, because of
Speaker 10: the pain, it's easy at times to to to shoot
Speaker 10: the message. So I had a lot of sleepless, sleepless
Speaker 10: nights at times trying to pull all this together and
Speaker 10: and you attacked at times, uh you know, but but
Speaker 10: it was it was it was all worth it. And
Speaker 10: there's some amazing people out in who are dealing with
Speaker 10: the RPS, and and you know, I still see, you know,
Speaker 10: what my mother is going through daily, and it's really
Speaker 10: taken her her her whole, her whole life. To be
Speaker 10: honest with you now, you know, she's now bedridden and
Speaker 10: sad to say, and uh so it's it's it still
Speaker 10: inspires me to want to get out there and change.
Speaker 10: And because also there aren't many other advocates that are
Speaker 10: known or can do what I can do with this,
Speaker 10: you know, these films, I kind of feel like it's
Speaker 10: my it's my, you know, god given destiny to try
Speaker 10: to continue to fight for people with CRPS. And I've
Speaker 10: come to know so many and have so much respect
Speaker 10: and love for them too as well.
Speaker 12: That's how we met. How you and I actually met
Speaker 12: is because of CRPS and what you're doing with Trial
Speaker 12: by Fire is so vital to get information out there,
Speaker 12: and unfortunately in America, we don't have as much information
Speaker 12: out there as they do in other countries. When I
Speaker 12: was in the Netherlands, my girlfriend had gotten into a
Speaker 12: bad accident and I got to see an entire protocol
Speaker 12: that they have to watch out for CRPS and people
Speaker 12: who get injured like that. But we have nothing like that,
Speaker 12: especially here. But I know that you're not just showing
Speaker 12: this here in the United States. I know it's been
Speaker 12: seen in well over what twenty countries. You've won numerous
Speaker 12: awards with this, with this documentary. And now what's exciting
Speaker 12: to me is that now it's going to be carried
Speaker 12: on Netflix soon, isn't it. Oh no, no, Amazon Prime,
Speaker 12: Amazon Prime.
Speaker 10: Yeah, it should be there hopefully in the next few weeks.
Speaker 10: Which is really exciting. I know, you're right, it's probably
Speaker 10: been seen in over twenty five countries and and I
Speaker 10: assume by by uh who knows. I mean at this point,
Speaker 10: maybe millions of people, because it's still getting seen and
Speaker 10: because it's it's been on PBS, it's been on you know,
Speaker 10: some great platforms already. So it's, uh, it's very exciting.
Speaker 10: And we plan on, even with this new documentary that
Speaker 10: we're doing Drop by Fire, to go into other countries
Speaker 10: to kind of examine what's going on right now as
Speaker 10: far as that. But it you know, it's it's it's
Speaker 10: and I'll say this, it's I wish I wish it
Speaker 10: was it was easier to to to to get this done.
Speaker 10: And you think with all the people who are dealing
Speaker 10: with pain, I mean, hundreds of millions of people are
Speaker 10: dealing with pain. It's one of the biggest biggest businesses
Speaker 10: is the pain. Unfortunately, yeah, unfortunately, I don't know how.
Speaker 12: Many VID chronic pain patients have been hurt so badly of.
Speaker 10: Course, of course, and what you're doing you don't know. Oh,
Speaker 10: I'm sorry, go.
Speaker 12: Ahead, I'm sorry, I'm sorry, go ahead.
Speaker 11: No, I was saying, she was just saying what you're
Speaker 11: doing is so vital.
Speaker 10: Yeah, yeah, no, And I was saying that, you don't
Speaker 10: know how many doors I've knocked gone to try to
Speaker 10: get some small funding just to get this done. And
Speaker 10: you know, the sad thing, especially with CRPS is there's
Speaker 10: there's no cure, so there's you know, there's no money
Speaker 10: in that. So it's hard to find people who who say,
Speaker 10: you know, yeah, well we'll get involved. I mean I
Speaker 10: even reached out to a lawyer that's that's you know,
Speaker 10: pushing trying to fight for people would see RPS and
Speaker 10: and you know, you got to figure that a lawyer
Speaker 10: who might take one case and who could make you know,
Speaker 10: hundreds of thousands, if not more than that, you know,
Speaker 10: is is more concerned with you know, how much it's
Speaker 10: going to cost, you know what I mean, even even
Speaker 10: if it was twenty five thousand dollars. But I mean
Speaker 10: even twenty five thousand dollars could do a lot for us,
Speaker 10: but to get you know, some scene shot. But you know,
Speaker 10: they can make a million dollars or if not more,
Speaker 10: on one case, and if they bring in ten cases,
Speaker 10: they could make you know, a whole lot of money.
Speaker 10: But so it's it's everyone is really in it for
Speaker 10: for for the money and healthcare.
Speaker 12: That's true, and one of the one of the key
Speaker 12: treatments what's the RPS is kind of man infusions and
Speaker 12: for the vast majority of patients having to pay cash
Speaker 12: out of pocket because they're you know, or fight. I've
Speaker 12: been fighting insurance and I've got a provider that's allowing
Speaker 12: me to use it, but I'm having to fight. And
Speaker 12: the thing about this is too is yes, CRPS is rare,
Speaker 12: but people with rare diseases are not. One out of
Speaker 12: every ten people has a rare disease. And the light
Speaker 12: that you're shining on this is extremely important in the
Speaker 12: sense that a CRPS complex regional pain syndrome is the
Speaker 12: most painful disease known to modern medicine, and as you said,
Speaker 12: it has no cure. However, seventy percent of people with it,
Speaker 12: including children, will consider suicide as the option because it
Speaker 12: is that bad. It's called the suicide disease by the
Speaker 12: medical community and has been called that for over two
Speaker 12: hundred years. So it's been a disease that's known but
Speaker 12: not known enough. And the light that you're shining on
Speaker 12: this is vital to save lives.
Speaker 10: Yeah, yeah, yeah. And I've had a few people then
Speaker 10: I've had to that, you know, just reached out to me,
Speaker 10: and I've kind of had to say, listen, just don't
Speaker 10: do that and if you have to call me personally
Speaker 10: and let's talk. Over the years where I've literally had
Speaker 10: to try to, you know, just talk people out of things.
Speaker 10: And I remember of late, and I like to be
Speaker 10: real because you know, when when doing an interview, you
Speaker 10: could always gloss over things and and make everything out
Speaker 10: to be peachy and keen, but but it's really not.
Speaker 10: And I think that you know, the people who are
Speaker 10: dealing with this and the people who need to know
Speaker 10: about it need to hear the reality that that's out
Speaker 10: there at times of you know, what they're dealing with,
Speaker 10: because I hear reality from them all the time, and
Speaker 10: it's like, wow, I wish I could do more. But
Speaker 10: had to release lady recently who this was a couple
Speaker 10: of months ago, and she would always say just the
Speaker 10: nicest things to me. She would just I didn't know her,
Speaker 10: but she just reached out and you know, she was
Speaker 10: dealing with CRPS. And I remember before the last time
Speaker 10: when I spoke, so I say listen, just can need anything,
Speaker 10: just let me know, and so on and so forth,
Speaker 10: and no idea, you know how bad things were. And
Speaker 10: then probably a couple of weeks later, someone reached out
Speaker 10: and said, char Als, I know you and so and
Speaker 10: so we're good friends and she had a lot of
Speaker 10: respect for you, but you know she's no longer here.
Speaker 10: And I was literally just just shook it because, like
Speaker 10: I said, she would always encourage me. She would always
Speaker 10: say nice things and reach out and send me a
Speaker 10: nice message.
Speaker 12: And you know, to hear that was like, especially when
Speaker 12: we know that there are options and things that can
Speaker 12: be done out there, but it's money that gets in
Speaker 12: the way. It's lack of access. Then I'll access the
Speaker 12: care or if you don't have enough cash to put
Speaker 12: up front, you don't get it. So you know, yeah,
Speaker 12: this isn't as serious thing to talk about. And I'm
Speaker 12: glad that you're doing a second version and you're talking
Speaker 12: about other areas of the world, because some areas of
Speaker 12: the world are dealing with this better than we are,
Speaker 12: and we could we could take a turn out of
Speaker 12: their page, you know, and take a page out of
Speaker 12: their book, I should say, of what they're doing to
Speaker 12: help not only protect and preserve lives and save lives,
Speaker 12: but preventative medicines that we in America really kind of
Speaker 12: stink about. When it comes to preventative medicine, we.
Speaker 11: Stink well in a in a broader in a broader
Speaker 11: sense too. In America, we just don't. Yeah, there's not
Speaker 11: enough focus on preventative anything. When it comes to health.
Speaker 11: It's it's all about, you know, waiting until you get sick,
Speaker 11: and then we have good.
Speaker 12: Sick care sort of, but not great preventative.
Speaker 11: Exactly, yeah, exactly, Yeah, that's and unfortunately some of that
Speaker 11: I think it's just American culture. But uh, but yeah,
Speaker 11: but this is something in terms of CRPS. I mean,
Speaker 11: this isn't like it's not like you can just uh
Speaker 11: you know, as we were talking about, you know, there
Speaker 11: are treatments, but it's not like you can just go
Speaker 11: to the gym or take some vitamins. I mean, you
Speaker 11: have to be able to you have to be able
Speaker 11: to have access to to what you need, not to
Speaker 11: cure it because there is no cure, but but to
Speaker 11: try to manage it as best you can.
Speaker 10: And yeah, and there are people who literally, i mean
Speaker 10: who are traveling from different parts of the world just
Speaker 10: to you know, there's some treatment out here and for
Speaker 10: the kiddymene in Florida and literally hear the stories it
Speaker 10: traveling from, you know, whether it's Los Angeles, New York, Canada, Europe,
Speaker 10: and some have to do this every few months just
Speaker 10: to get a little bit of relief. And it's costly.
Speaker 10: This is not This is not you know, a couple
Speaker 10: of hundred dollars. This is you know, some some serious
Speaker 10: money to get on a plane, you know, and and
Speaker 10: and pay for treatment, have to stay in hotels, you know,
Speaker 10: have to rent cars on and so forth, just to
Speaker 10: get a little bit of relief for you know, three months.
Speaker 5: Yep, this is not easy.
Speaker 12: No, no, it's not.
Speaker 11: What was kind of the criteria Charles for in terms
Speaker 11: of people who you put into the film to talk
Speaker 11: about this and were there some people who you spoke
Speaker 11: with who you wanted to put in it, who maybe
Speaker 11: was there anyone who declined to be in it, because
Speaker 11: some people are, you know, as much as they might
Speaker 11: like to help and spread awareness, some people are obviously
Speaker 11: just very private about their health. So I'm curious what
Speaker 11: the criteria was and did you encounter anybody who just
Speaker 11: said no, I'd like to help, but I don't want
Speaker 11: to be in the in the documentary.
Speaker 10: You know, I'll say this, almost everyone wants to be
Speaker 10: and wants to share your story. Yeah, because and miscrosses
Speaker 10: color lines is called crosses gender lines, as crosses everything.
Speaker 10: I mean, when when you know and dealing with this,
Speaker 10: you know this type of pain, people just want to
Speaker 10: tell their story. I mean, we get now hundreds of
Speaker 10: messages where people are like, Charles, I just want to
Speaker 10: tell my story, please, I have a story to tell.
Speaker 10: And it's it's to the point now where it's like
Speaker 10: I'm so you know, focused on trying to raise some
Speaker 10: money to get this done that it's like listen, I've
Speaker 10: got to reply and listen, I will get back to
Speaker 10: you because you know, we have so many messages that
Speaker 10: it's and some of these messages are like very long
Speaker 10: where you know, it's going to take me a few
Speaker 10: minutes to just read through the one message. But I understand,
Speaker 10: you know what they're dealing with. So we're going to
Speaker 10: have to get back, take a day and get back
Speaker 10: to everybody. But no, everyone wants to share. Even back
Speaker 10: then when you were shooting the film, everyone wanted to
Speaker 10: and wanted to share. And I think in many ways,
Speaker 10: because you know, like we just talked about this being
Speaker 10: called a suicide disease, that a lot of people are
Speaker 10: I mean, you know, you can't even me and you
Speaker 10: we don't deal with what they're dealing with. And we
Speaker 10: can't understand being in pain day and night. I mean,
Speaker 10: can you imagine stubborn your toe and the pain of
Speaker 10: that and having that day and night and now you
Speaker 10: take that and amplify that a hundred times where this
Speaker 10: is running through someone's body. We can't understand what that is, right.
Speaker 10: So I mean, when you think about that, and and
Speaker 10: people are thinking about, you know, maybe taking their own life,
Speaker 10: they want to share. There's a lot of people. I
Speaker 10: just I just had a young lady a few days
Speaker 10: ago send me a message and she contatacted me through WHAT'SPP.
Speaker 10: She said, Charles, I don't think I could do this anymore.
Speaker 10: And she's got I think two kids, and and I'm like, listen,
Speaker 10: just hang in. And you know she's got a fiance,
Speaker 10: her husband, and and.
Speaker 7: You know this is wow.
Speaker 10: I you know, words can't even express what what what
Speaker 10: they're dealing with and how we need to fight for
Speaker 10: this and this is why I fight for it because
Speaker 10: once you know, once again, if if if I don't,
Speaker 10: I don't know who will. Right Oh, thank god, I'm
Speaker 10: able to have the resources as far as getting the
Speaker 10: message out there and putting a good story together and
Speaker 10: so on and so forth. You know, I wish it
Speaker 10: was easier, you know, sometimes I you know, like I said,
Speaker 10: I'm banging my head trying to understand, you know, why
Speaker 10: it's so hard to be able to get a project
Speaker 10: like this together. But I, you know, I understand that
Speaker 10: this is the world we live in, and but we
Speaker 10: keep fighting. And when you know, hope. We were working
Speaker 10: on going to Italy to highlight some of the treatment
Speaker 10: that they have over there. So we've been talking to
Speaker 10: that clinic.
Speaker 12: Over there, and Italy has treatment that if administered early enough,
Speaker 12: it can halter or reverse or put into remission to
Speaker 12: our PS. I used to know a woman who had
Speaker 12: a fourteen year old daughter that took her to Italy
Speaker 12: for the treatment. It did work for a number of years,
Speaker 12: and then I guess it came back went back to
Speaker 12: Italy for an additional treatment. But it has to be
Speaker 12: done early, early, early, Like by the time we knew
Speaker 12: that I had CRPS. It was too late for that
Speaker 12: to work for me and to access it here in
Speaker 12: the United States. I don't think you can. I think
Speaker 12: it's impossible. It's not even like an option.
Speaker 10: For Yeah, I think it's only in Italy.
Speaker 12: People have mortgaged their houses to get you know, done
Speaker 12: anything to get their loved ones were there to try it. Yeah, yeah,
Speaker 12: And I'll just just have something to try. And I
Speaker 12: do want to say, I mean, this is a serious topic.
Speaker 12: It is difficult to talk about at times, but this
Speaker 12: is why you're done this documentary and why it's so
Speaker 12: important to talk about these documentaries and get that information
Speaker 12: out there. But if you are having any concerns, or
Speaker 12: you're not feeling too hot today, or you need some help,
Speaker 12: please remember you can dial nine eighty eight. Nine eight
Speaker 12: eight is the suicide and crisis Lifeline, and there are
Speaker 12: people there that can help you. So there's always a
Speaker 12: voice out there. Don't forget nine eighty eight.
Speaker 11: Yeah, yeah, yeah, absolutely, And I.
Speaker 10: Think too as well. Part of me, you know why,
Speaker 10: I fight too as well, because you never know what
Speaker 10: might be around the corner, and you want, you want
Speaker 10: folks to to to hang in there and hold out
Speaker 10: hope that maybe there is some treatment out there that
Speaker 10: that you know, I won't have to mortgage your house
Speaker 10: or fly across the world to get done. You know,
Speaker 10: hopefully there is something that that.
Speaker 12: Part of my is with you doing this. I have
Speaker 12: hope that maybe that gets some of the people up
Speaker 12: on Capitol Hill to pay attention and approve treatments that
Speaker 12: are working for people with c the RPS. But I
Speaker 12: do want to also bring up because Charles, you've done
Speaker 12: a lot of really great advocacy work, especially in the
Speaker 12: realm of the Forever Sick, and you've also done work
Speaker 12: in highlighting diabetes and type one diabetes and type two diabetes.
Speaker 12: I know you did a documentary series on that as well,
Speaker 12: and I wanted to make sure that our listeners heard
Speaker 12: about that.
Speaker 10: Yeah, yeah, yeah, We've done some great shows, and you know,
Speaker 10: we have the first docuseries we did doctor reality series
Speaker 10: was called a Verse. We shut that in Jamaica and
Speaker 10: featured you know, people living with diabetes. And I've done
Speaker 10: a documentary called The Diabetic You and a couple other
Speaker 10: projects on diabetes, and so it's been very powerful and
Speaker 10: you know, now that I'm even talking into you, i'd
Speaker 10: love to follow up once we get off to as well,
Speaker 10: because there probably is some other things that we could
Speaker 10: be doing, whether it's starting some sort of you know,
Speaker 10: online petition where we have you know, a few thousand
Speaker 10: people signs through things that could be you know, brought
Speaker 10: in front of some legislation or or some more awareness
Speaker 10: that maybe you could help me with and help the
Speaker 10: community get out there. So we can kind of make
Speaker 10: this more movement because we have to force the hands
Speaker 10: of these companies. We do, these pharmaceutical companies, we can
Speaker 10: just stay. They've got to open up their eyes and
Speaker 10: take account and at least, if nothing else, help support
Speaker 10: the people, whether it's even with treatment options.
Speaker 12: Oh exactly, look at what's happening now in our community.
Speaker 12: LOTOS snow track Zone is a medication that's working for
Speaker 12: a lot of people c RPS and small fiber in neuropathy,
Speaker 12: including myself. However, the pharmaceutical company that makes now trucks
Speaker 12: On won't make it in the low doses that people
Speaker 12: like us need it because it's not profitable for them.
Speaker 12: They only make it in the extremely high dose, so
Speaker 12: all of us have to go to compounding pharmacies to
Speaker 12: get the medication, which means we're paying one hundred percent
Speaker 12: out of pocket and it's not cheap, you know, and
Speaker 12: have it made that way because insurance gets to take
Speaker 12: a walk because it's compounded. Pharmaceutical company goes not enough
Speaker 12: money in that for us, So we're not going to
Speaker 12: make it, you know, and you're you know, you're left
Speaker 12: with either you know, no money, no med or whatever
Speaker 12: you're going to do to get the med yep exactly,
Speaker 12: Maybe maybe we need.
Speaker 10: To get a petition against or for that company, right
Speaker 10: so maybe they can open up their eyes and say,
Speaker 10: what is this? Who are these people? And and maybe
Speaker 10: take a different look at it. I think, you know,
Speaker 10: collectively is a community while it's a rare disease. I'm
Speaker 10: sure they're I don't know how what the number is,
Speaker 10: but CRPS people. But any petition with you know, fifty
Speaker 10: sixty to seventy thousand signatures might make that company say,
Speaker 10: you know what, we may need to take a look
Speaker 10: at this or at least address this in some form
Speaker 10: of fashion.
Speaker 11: Right right, exactly, exactly, Charles. It is already approaching the
Speaker 11: top of the hour. We need to begin to wrap up,
Speaker 11: but before we run out of time, I want to
Speaker 11: make sure the people know where to find the documentary
Speaker 11: Trial by Fire, and also too where they should go
Speaker 11: to find your other work, your other documentaries, and anything
Speaker 11: else that you want our listeners to know about how
Speaker 11: to keep up with everything that you're doing.
Speaker 10: Definitely, and I really appreciate this. My website is probably
Speaker 10: the best place. It's BELA and l eMedia dot com.
Speaker 10: B L l A A and d L e E
Speaker 10: l l eMedia dot com and you can always just
Speaker 10: google my name Charles Maddox. I'm not hard to find.
Speaker 10: Trial by Fire, like I said, is on YouTube right now,
Speaker 10: on my on my uh on one of my pages,
Speaker 10: the Future of Health Network. But probably will more directed
Speaker 10: toward the Amazon Prime so that we can really get
Speaker 10: people focused there. And who knows, maybe uh you know,
Speaker 10: with with some great views on Amazon Prime, they may
Speaker 10: be interested in in doing something bigger with us regarding
Speaker 10: CRPS and uh so we really want to push that initiative,
Speaker 10: and and and and for those who are listening, do
Speaker 10: remember that collectively, you know, as an army of people,
Speaker 10: we work better because we have to share. There's there
Speaker 10: are people who are literally just now seeing try by
Speaker 10: Fire after so many years, and we have to make
Speaker 10: sure that when we get this opportunity that we share,
Speaker 10: we share. We share, We ask our friends to share,
Speaker 10: we ask the friends of our friends to share. And
Speaker 10: even though at times a lot of us don't get
Speaker 10: the support that we would like, just keep pushing, just
Speaker 10: keep sharing, get the message out there. And I think
Speaker 10: if we work together at least we can cause some
Speaker 10: attention and some eyes to be put on on some
Speaker 10: things so that we can try to get some more
Speaker 10: help and resources out there.
Speaker 11: Yeah, absolutely, absolutely, all right. Well, Charles Maddox, thank you
Speaker 11: so much, my friend. It's wonderful to have you back
Speaker 11: on the show. Always great to speak with you, and
Speaker 11: we really love and appreciate what you're doing.
Speaker 10: And keep it up, man, keep it up, thanks so much,
Speaker 10: and have a good one.
Speaker 11: Absolutely, Charles, thank you. Take care about it all right.
Speaker 11: That was Charles Maddox, filmmaker and also a celebrity chef
Speaker 11: and actor. And he does a lot of stuff, by
Speaker 11: the way, Yeah, not just you know, obviously we're focused
Speaker 11: on the documentary with that conversation, but he's a busy guy.
Speaker 11: He's got a lot going on, so you should definitely
Speaker 11: check out everything that he's doing.
Speaker 12: Absolutely, and he and see I follow him all the
Speaker 12: time because he does so much in the chronic illness
Speaker 12: area and shine such a great light on it, especially
Speaker 12: with that series he did that serious he was talking
Speaker 12: about on diabetes is excellent and they talk about things
Speaker 12: that they do to you know, help stay healthier, diet
Speaker 12: and so forth. So it's it's good to have those
Speaker 12: conversations frankly, and Trial by Fire one hundred percent excellent
Speaker 12: movie to watch. If you haven't seen it, please see it,
Speaker 12: share it, help spread awareness. The more people that are
Speaker 12: aware and know, the more we can do to try
Speaker 12: and help them prevent people from losing their lives.
Speaker 11: Yep.
Speaker 12: Absolutely, and again I want to just remind people if
Speaker 12: you're having a hard day or you're needing someone to
Speaker 12: talk to, please remember nine eight eight is a great
Speaker 12: number you can call. You can find help and support
Speaker 12: there and no shame nine eight eight yep.
Speaker 11: Absolutely. All Right, while we are approaching the top of
Speaker 11: the hour, we're going to take a quick break, show
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