Matt Connarton Unleashed 8-31-24 hour 1

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1:18 Speaker 1: I'm the best days.

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1:37 Speaker 1: God did dust on my shoes just to prove I can be now using your parents, I don't need and nice leave, probably treaming up your lips.

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7:00 Speaker 3: No wealthy God. We'll show you.

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7:53 Speaker 3: Now corner a questions or crew well, oh cr where you are holding on by crown through the world, not thing and black or La group pour out you.

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8:29 Speaker 4: Here's a free and from.

9:19 Speaker 3: Would you like to know money?

9:21 Speaker 10: Yeah? Yeah, yeah yeah.

9:30 Speaker 11: That is two radio premiere, so open this week's Matt Connorton Unleashed. That was the FM radio premiere of Cyber Jesus, the new single from Silicon Kong, and to open the show we played the American radio premiere of our friends from Across the Pond Club Paradise and their great new track what If These Days, which I absolutely love. And this is of course Matt Connorton Unleashed. We are live from the studios of w m n H ninety five point three f I'm and Glorious, Manchester, New Hampshire. Today is Saturday August thirty one, twenty twenty.

10:06 Speaker 5: Four and I Am not alone.

10:18 Speaker 11: Cool a little remix for you there of your your theme that was different.

10:22 Speaker 5: Yes, I kind of like it.

10:24 Speaker 11: Yeah yeah, but you did that remix. That's right. It's it's still uh it's Studio Killers, but it's so same band but featuring Kim Petris.

10:35 Speaker 5: Oh cool.

10:35 Speaker 11: So maybe that's who remixed it. I don't know, but uh, that's cool.

10:41 Speaker 5: I like it.

10:42 Speaker 12: Good Morning Sunshine and it just stopped for some reason because it heard my lovely voice.

10:47 Speaker 11: That's weird. It's still playing, but it's like there's no audio there anyway. Well that's definitely a remix. Yes, yes, so welcome everybody. Of course, we like I said, we opened the show with a couple of radio premieres, Silicon Kong and before that, Club Paradise, both great new tracks. We'll try to hit those again later in the show in the second and third hours today in case you uh you miss those, but really good stuff. Our first guest should be calling in in just a couple of moments, uh, filmmaker Charles Maddox, who has been on the show a couple times over the years, and of course he's got a documentary called a trial by fire, which we're going to talk with him about that.

11:24 Speaker 11: In the second hour, we have ever Felt who is returning to the program, Adam Steglitch, and I don't know if anyone else will be with him, but he did message us he is on Skype. They're from Chicago and we had them as a couple of years ago. I love their sound, really really great band. And then in the third hour, we have Dave Strong coming in and I think he's from Boston if I'm not mistaken, and.

11:48 Speaker 12: It may be coming with some company.

11:50 Speaker 11: We've got We've got We've got several tracks of his He's got a brand new single by the way, that h We're not gonna We're actually not going to play the new single that just came out because the new single, so you know, if there's bad words in a song, I often make radio edits, but I listened to the new single and it would have ruined the song if I'd made it radio edit of the new one, brand new It's called I Hate Joe King's Roommate. But he did send us some other tracks to play, so we have some of Dave Strong's studio tracks that I really look forward to've I became an instant fan as soon as I listened to him.

12:25 Speaker 11: But yeah, but I am curious to ask him about the new single. I hate Joe King's roommate because I'm curious to know who is joking and what is his roommate done to Dave Strong to elicit a song with so much F word in it, so much track. Well, it's a punk song, so it's not a you know, distrack is kind of reserved for hip hop. I would say, but but I didn't know that.

12:50 Speaker 12: I thought anybody could do well.

12:52 Speaker 11: But he's certainly the things that he says about this individual about whom the song is about, he certainly is dissing them. Oh, by the way, too funny thing. As we were listening to that Silicon cong tract, Cyber Jesus immediately thought, I don't know if you thought this that I could imagine him playing with Green Jello or Green Jelly, whichever you want to call them. I think he would fit right in with them. Of course, they were Tuesday night at Terminus in Nashua. A show that you have insane, the show that you helped put together.

13:26 Speaker 12: Actually that was insane, And I got to tell you you got to get down to Terminus to see a show period. But ye, see Green Jello.

13:33 Speaker 11: There was just oh amazing, absolutely incredible, incredible. Yeah, such a great time. And it's funny. I said to Eleanor at the end of the night as we were leaving, I said, I hope nothing got broken, or I said, I actually I was quite sure something had gotten broken. I said, I hope nothing important got broken during the show tonight. And she kind of shrug and said, well, if it did, we'll figure it out. You know, it was worth it.

13:55 Speaker 12: So I don't think anything. I don't remember anything becoming Yeah, I.

14:01 Speaker 11: Don't know, but no, but it was. That was a great time. That was a great time. And it's one of those things who it all started with. You know, we had them because they had played in Manchester yep at the beginning of the summer I think it was.

14:12 Speaker 12: And it did not start with me.

14:14 Speaker 11: Right well they so they they played, right, they played, Uh, they played at the Shaft Scheme.

14:18 Speaker 13: Yes, and then.

14:21 Speaker 11: Jesse, your your son had suggested because he had gone to the show. He was at the show, and he suggested, you see if they would come on the next morning on to here, which was all.

14:30 Speaker 12: I was planning on going to the show right told me about it and said, you know, you ought to see if these guys want to come in, and I said, that's a great idea. Yeah, so I reached out to him maybe two months before they came to New Hampshire.

14:41 Speaker 5: Yeah, and.

14:44 Speaker 11: That was a long shot too, so it's good that you went for it. The reason I say it was a long shot is usually if a band is going to do a radio interview in a particular market where they have a show because they're touring, they you know, usually the show, the radio show is before because the idea of going on the radio show is to sell tickets to the to the concert. So usually so I didn't. I was actually surprised they said yes because they were kind enough to come on and Bill mannspeaker, great guy, everybody from the band.

15:11 Speaker 11: They were kind enough to come on the morning after they had just played the show in Manchester or so, so that was really cool. Well, I'm just saying though, typically in the industry, when you're when you're doing when you're doing radio interviews, you don't usually go on to show the day after. So that's why I'm saying that was especially cool of them.

15:26 Speaker 12: To do that, absolutely, and they all came in.

15:29 Speaker 11: It was amazing.

15:30 Speaker 12: It was if you didn't see that it is recorded, of course, but not now.

15:35 Speaker 11: Yeah, no, no, no, but yeah, So that was But so that led to a conversation after the show, because you know that we talked for a few minutes after the show because they were our last guests of the day and.

15:50 Speaker 5: Bill.

15:51 Speaker 11: Bill said something about, you know we're going to be coming back through is there somewhere else we can play? And he wanted to offer a free con a free show, Yeah, which.

15:59 Speaker 12: Is pretty insane. Cool. Yeah, to do that and you get Terminus.

16:03 Speaker 11: At that point it was in your hands to get and I thought Terminus.

16:08 Speaker 12: Might be a great location. Reached out to Eleanor and they said yes. And I know they took very good care of Green Jellow because I will say Terminus knows how to treat their artists quite nicely.

16:21 Speaker 11: Absolutely, No, that was insane.

16:23 Speaker 12: That was awesome, grateful for Terminists to post it. It was an incredible evening. It was like having a private concert in a way. Yes, because it was limited. It was limited amount of people who could come. And I have never seen so many pool noodles in my life, not even at the.

16:40 Speaker 11: Pool right exactly exactly.

16:43 Speaker 12: No, No, that was awesome. That was definitely awesome.

16:46 Speaker 11: Excuse me speaking of Terminus too, of course your art has been hanging there.

16:51 Speaker 12: Yeah, and Spelfie came and sat down and did an interview with me, and it's a it's a really in depth interview. We talked for about an hour. We talked about the pieces that are have been hanging up in Terminus all month.

17:03 Speaker 11: We should tell people, Spelfiest part of the Midnight Creatives Collective, which of course Terminus is a part of, which is CRACT. But and we had them on the show just recently. Spelfie and Eleanor and Andre all came on the show.

17:16 Speaker 12: And every month they pick an artist to feature, and I was this one's artist, and they actually chose to have my darkest paintings that I had never actually put all together. So that was that was interesting to see all of those paintings together as a collection. Yeah, and yeah, kind of powerful to see that because it's a little jarring because none of them were They were all dark paintings for the most part. There's one that was maybe not so dark, but yeah, that was insane to see them all together like that.

17:49 Speaker 11: Yeah, yeah, absolutely so. Yeah, lots of good stuff going on. But yeah, that's up on YouTube, right, the interview that Stealthy did YouTube so people can watch them now.

18:00 Speaker 12: It's on YouTube, It's on my Facebook page, it's on the Midnight Creative Collector's page. You can also find links to it at gencoffee dot com. We might blog is posted yes j E N N C O F f ey dot com.

18:14 Speaker 11: Yes, yes, I do want to say hello to everybody to in the chat room. Let's see we have Jay Bellow from the band Chasing the Devil. Of course they're going to be coming on soon, right, I think are you working on getting them back on?

18:27 Speaker 12: I am waiting to hear respond.

18:29 Speaker 11: They've got a big tour that they're that they're going on. So very happy for them. And and actually the when they were on previously, when the single for a Beautiful Nightmare came out and the guys were on the show, Yeah, they were talking about that, how they were looking into, uh, possibly doing a tour and so very excited about that. So yeah, we do need to get them on, you know, even if they're even if they're out on tour, if they want to do a phone or something. Love those guys. But Andy Jay is such a great guy, always a big supporter of the show.

18:59 Speaker 11: And let's see, we also have Hope the Rapper in the chat room. Hello to our friend Hope the Rapper. We love him. And let's see, I got to look at more than one chat room now since I'm splitting the stream up to multiple locations because you can stream it on YouTube now too, I forget figured out how to do that.

19:15 Speaker 12: We are streaming live in many places.

19:17 Speaker 11: And our friend Bruce from Legion of Solas of course, great organization based in Connecticut who does a lot to promote the music scene as well. Bruce is in the chat room and he's in there pretty much every week, which is nice. And he says morning friends, and our first guest is late you hear anything from.

19:34 Speaker 12: Him active online but not hurt anything.

19:37 Speaker 13: Okay, Well, what we'll do.

19:39 Speaker 11: You know what I think I'm gonna do. I'm gonna call an audible here upon fully intended actually, so we'll see if maybe he's having a technical problem. But since our friend Jay is in the chat room, Jay Bellow from Chasing the Devil, and they are going on a big tour. I think we should take a break and play We did the world radio premiere for this actually on the show. We were the first ones to play it. Drowning, great great track, absolutely, absolutely, such a great band. Uh, let's give this a spin and then we'll come back and we'll uh, we'll figure out where we're going from here, and perhaps our guests will appear.

20:15 Speaker 11: We'll see what happens live radio. But hey gives us, ah, gives us an excuse to play some Chasing the Devil here.

20:21 Speaker 13: It is drowning, the New days a game.

20:41 Speaker 5: Through this, just this awesome time. Well, holding on to whatever saying?

20:54 Speaker 3: Is that.

21:05 Speaker 5: Count that.

21:30 Speaker 1: Streams rocksnails so si.

21:54 Speaker 4: Cop, that's lie, So come on, trust, come.

22:17 Speaker 5: Truck, feel coming Row.

22:45 Speaker 4: Trumps lie South, not no many things.

23:07 Speaker 5: I don't us to be.

23:27 Speaker 14: Small, don't want campers, camp small, Dona camp.

23:48 Speaker 13: Small so good.

24:10 Speaker 11: That is drowning the band is Chasing the Devil and we have with us now via phone. I believe our friend Charles Maddox is there.

24:17 Speaker 5: Charles, is that you?

24:19 Speaker 10: Hey, how's everybody doing this morning?

24:22 Speaker 5: Good? Good?

24:23 Speaker 11: Welcome, or I should say welcome back. You've been on with us a couple of times before over the years. I think the first time. The first time was jeez, it had to be at least five years ago. The first time you were on, I think you had had you put out the documentary about diabetes.

24:39 Speaker 10: Was that okay, yeah, yeah, yeah, that's been out.

24:43 Speaker 11: It's coming back to me now, yeah. Yeah. Well you're a busy guy. You do a lot of stuff. So, so welcome to the show on this Saturday morning. Jenny is here of course as well, and the subject of your newest documentary, Trial by Fire, is something that obviously Jenny is she can relate too, unfortunately, because it is about a very serious subject CRPS, complex regional pain syndrome. And let me ask you right off the top, Charles, what what was it that compelled you to make this particular documentary Trial by Fire.

25:19 Speaker 7: Yeah, you know it.

25:21 Speaker 10: My mother suffers from from CRPS, and I remember she had it probably about maybe about three two three years, maybe even longer, and I would go see her and I really didn't have any understanding of what she was going through, and she was was at a place where, you know, she would complain about the pain. Once again, I was ignorant to what CRPS was, so I would just say, well, Mom, maybe you should go to the gym, Maybe you should try to stretch it out. You know, you got to walk it out. You know, things like that that you know, really weren't going to help.

26:03 Speaker 10: And then one day I went over there. Now you know, she's a very proud Jamaican woman, and I was there one day and this was, you know, like I said, she was dealing with a lot of pain, but you know, she was still mobile and so on and so forth. And I remember her saying something about, you know, wanting to maybe not be on earth anymore. And I said, WHOA hold on a second, that that. You know, my mother talked like this, you know. So at that moment, I literally went online and went to YouTube and just started you know, looking up stuff and and online looking up stuff.

26:42 Speaker 10: And I just bumped into someone who I think had CRPS and it was real bad and they were talking about how bad it was and about suicide and things like that. And that's when I said, wow, you know what, I don't know what this is or what this is doing to her. I get it now because I saw someone else who was explaining it, and I said, you know what I've got to do something about this, and it was kind of like I wanted to kind of chronicle what she was going through. But through chronicling or trying to chronicle what she was going to go through or going through, you know, I had to kind of reach out into the community to say, you know, let me reach out and try to find other people who are dealing with this, because I want to tell this story, not just her story, but just overall and see what was going on with this condition called CRPS.

27:37 Speaker 10: And that kind of opened up the door and I met some people in Tampa Saint you know, I was living in Orlando at the time, so I met some people who were in Orlando area who were I have a kids of it, and you know, they said, hey, Charles, you know what we'd love to, you know, help you tell this story. And that's that's pretty much how it got started to really just wanting to see what she was living through, but then also met other people who were dealing with it as well.

28:10 Speaker 11: In terms of reaching out to other people who are dealing with it, was that, I mean, how challenging was it to find those people because CRPS, I mean, the average person probably has no idea what it is and and it's not always uh you know, as as you mentioned, easy to diagnose, and I mean, Jenny, how long the years before the years? Yeah, you know obviously. And the thing is too, it's it's such a conundrum. It's like when you have an illness that is rare. Of course, it's it's harder to diagnose because fewer medical professionals have seen that particular illness and there's a lack of research and whatnot because it's you know, it's not again, it's not something most people have heard of.

28:49 Speaker 11: You know, everybody knows what diabetes is, but the average person has no idea what CRPS is. So was it was that challenging finding these people?

28:59 Speaker 10: No, actually wasn't. The thing is is, you know, there are some some some great groups on social media, whether it's Facebook or whatever it may be. And the particular person that I ran into that was close to me, they had a great support group and also they knew a lot of other people, so they had resources from doctors to experts to uh, you know, hundreds of people that were following them, and that that kind of opened up the door that I found other advocates. Like at that that time, it was like Barbie Ingele, who was very vocal a few years ago.

29:38 Speaker 10: You know, she still lives about CRPS and pain, and it just started connecting. And because there wasn't much advocacy on it, the fact that this film was being put together was really you know, raising a lot of awareness. Now, they don't get it wrong. It wasn't it wasn't easy. They were. There are a lot of nights where, you know, at times, because of the pain, it's easy at times to to to shoot the message. So I had a lot of sleepless, sleepless nights at times trying to pull all this together and and you attacked at times, uh you know, but but it was it was it was all worth it.

30:25 Speaker 10: And there's some amazing people out in who are dealing with the RPS, and and you know, I still see, you know, what my mother is going through daily, and it's really taken her her her whole, her whole life. To be honest with you now, you know, she's now bedridden and sad to say, and uh so it's it's it still inspires me to want to get out there and change. And because also there aren't many other advocates that are known or can do what I can do with this, you know, these films, I kind of feel like it's my it's my, you know, god given destiny to try to continue to fight for people with CRPS.

31:12 Speaker 10: And I've come to know so many and have so much respect and love for them too as well.

31:17 Speaker 12: That's how we met. How you and I actually met is because of CRPS and what you're doing with Trial by Fire is so vital to get information out there, and unfortunately in America, we don't have as much information out there as they do in other countries. When I was in the Netherlands, my girlfriend had gotten into a bad accident and I got to see an entire protocol that they have to watch out for CRPS and people who get injured like that. But we have nothing like that, especially here. But I know that you're not just showing this here in the United States.

31:51 Speaker 12: I know it's been seen in well over what twenty countries. You've won numerous awards with this, with this documentary. And now what's exciting to me is that now it's going to be carried on Netflix soon, isn't it. Oh no, no, Amazon Prime, Amazon Prime.

32:09 Speaker 10: Yeah, it should be there hopefully in the next few weeks. Which is really exciting. I know, you're right, it's probably been seen in over twenty five countries and and I assume by by uh who knows. I mean at this point, maybe millions of people, because it's still getting seen and because it's it's been on PBS, it's been on you know, some great platforms already. So it's, uh, it's very exciting. And we plan on, even with this new documentary that we're doing Drop by Fire, to go into other countries to kind of examine what's going on right now as far as that.

32:50 Speaker 10: But it you know, it's it's it's and I'll say this, it's I wish I wish it was it was easier to to to to get this done. And you think with all the people who are dealing with pain, I mean, hundreds of millions of people are dealing with pain. It's one of the biggest biggest businesses is the pain. Unfortunately, yeah, unfortunately, I don't know how.

33:15 Speaker 12: Many VID chronic pain patients have been hurt so badly of.

33:21 Speaker 10: Course, of course, and what you're doing you don't know. Oh, I'm sorry, go.

33:27 Speaker 12: Ahead, I'm sorry, I'm sorry, go ahead.

33:29 Speaker 11: No, I was saying, she was just saying what you're doing is so vital.

33:35 Speaker 10: Yeah, yeah, no, And I was saying that, you don't know how many doors I've knocked gone to try to get some small funding just to get this done. And you know, the sad thing, especially with CRPS is there's there's no cure, so there's you know, there's no money in that. So it's hard to find people who who say, you know, yeah, well we'll get involved. I mean I even reached out to a lawyer that's that's you know, pushing trying to fight for people would see RPS and and you know, you got to figure that a lawyer who might take one case and who could make you know, hundreds of thousands, if not more than that, you know, is is more concerned with you know, how much it's going to cost, you know what I mean, even even if it was twenty five thousand dollars.

34:26 Speaker 10: But I mean even twenty five thousand dollars could do a lot for us, but to get you know, some scene shot. But you know, they can make a million dollars or if not more, on one case, and if they bring in ten cases, they could make you know, a whole lot of money. But so it's it's everyone is really in it for for for the money and healthcare.

34:51 Speaker 12: That's true, and one of the one of the key treatments what's the RPS is kind of man infusions and for the vast majority of patients having to pay cash out of pocket because they're you know, or fight. I've been fighting insurance and I've got a provider that's allowing me to use it, but I'm having to fight. And the thing about this is too is yes, CRPS is rare, but people with rare diseases are not. One out of every ten people has a rare disease. And the light that you're shining on this is extremely important in the sense that a CRPS complex regional pain syndrome is the most painful disease known to modern medicine, and as you said, it has no cure.

35:30 Speaker 12: However, seventy percent of people with it, including children, will consider suicide as the option because it is that bad. It's called the suicide disease by the medical community and has been called that for over two hundred years. So it's been a disease that's known but not known enough. And the light that you're shining on this is vital to save lives.

35:52 Speaker 10: Yeah, yeah, yeah. And I've had a few people then I've had to that, you know, just reached out to me, and I've kind of had to say, listen, just don't do that and if you have to call me personally and let's talk. Over the years where I've literally had to try to, you know, just talk people out of things. And I remember of late, and I like to be real because you know, when when doing an interview, you could always gloss over things and and make everything out to be peachy and keen, but but it's really not.

36:29 Speaker 10: And I think that you know, the people who are dealing with this and the people who need to know about it need to hear the reality that that's out there at times of you know, what they're dealing with, because I hear reality from them all the time, and it's like, wow, I wish I could do more. But had to release lady recently who this was a couple of months ago, and she would always say just the nicest things to me. She would just I didn't know her, but she just reached out and you know, she was dealing with CRPS.

37:00 Speaker 10: And I remember before the last time when I spoke, so I say listen, just can need anything, just let me know, and so on and so forth, and no idea, you know how bad things were. And then probably a couple of weeks later, someone reached out and said, char Als, I know you and so and so we're good friends and she had a lot of respect for you, but you know she's no longer here. And I was literally just just shook it because, like I said, she would always encourage me. She would always say nice things and reach out and send me a nice message.

37:36 Speaker 12: And you know, to hear that was like, especially when we know that there are options and things that can be done out there, but it's money that gets in the way. It's lack of access. Then I'll access the care or if you don't have enough cash to put up front, you don't get it. So you know, yeah, this isn't as serious thing to talk about. And I'm glad that you're doing a second version and you're talking about other areas of the world, because some areas of the world are dealing with this better than we are, and we could we could take a turn out of their page, you know, and take a page out of their book, I should say, of what they're doing to help not only protect and preserve lives and save lives, but preventative medicines that we in America really kind of stink about.

38:24 Speaker 12: When it comes to preventative medicine, we.

38:27 Speaker 11: Stink well in a in a broader in a broader sense too. In America, we just don't. Yeah, there's not enough focus on preventative anything. When it comes to health. It's it's all about, you know, waiting until you get sick, and then we have good.

38:42 Speaker 12: Sick care sort of, but not great preventative.

38:45 Speaker 11: Exactly, yeah, exactly, Yeah, that's and unfortunately some of that I think it's just American culture. But uh, but yeah, but this is something in terms of CRPS. I mean, this isn't like it's not like you can just uh you know, as we were talking about, you know, there are treatments, but it's not like you can just go to the gym or take some vitamins. I mean, you have to be able to you have to be able to have access to to what you need, not to cure it because there is no cure, but but to try to manage it as best you can.

39:15 Speaker 10: And yeah, and there are people who literally, i mean who are traveling from different parts of the world just to you know, there's some treatment out here and for the kiddymene in Florida and literally hear the stories it traveling from, you know, whether it's Los Angeles, New York, Canada, Europe, and some have to do this every few months just to get a little bit of relief. And it's costly. This is not This is not you know, a couple of hundred dollars. This is you know, some some serious money to get on a plane, you know, and and and pay for treatment, have to stay in hotels, you know, have to rent cars on and so forth, just to get a little bit of relief for you know, three months.

40:03 Speaker 5: Yep, this is not easy.

40:07 Speaker 12: No, no, it's not.

40:09 Speaker 11: What was kind of the criteria Charles for in terms of people who you put into the film to talk about this and were there some people who you spoke with who you wanted to put in it, who maybe was there anyone who declined to be in it, because some people are, you know, as much as they might like to help and spread awareness, some people are obviously just very private about their health. So I'm curious what the criteria was and did you encounter anybody who just said no, I'd like to help, but I don't want to be in the in the documentary.

40:40 Speaker 10: You know, I'll say this, almost everyone wants to be and wants to share your story. Yeah, because and miscrosses color lines is called crosses gender lines, as crosses everything. I mean, when when you know and dealing with this, you know this type of pain, people just want to tell their story. I mean, we get now hundreds of messages where people are like, Charles, I just want to tell my story, please, I have a story to tell. And it's it's to the point now where it's like I'm so you know, focused on trying to raise some money to get this done that it's like listen, I've got to reply and listen, I will get back to you because you know, we have so many messages that it's and some of these messages are like very long where you know, it's going to take me a few minutes to just read through the one message.

41:40 Speaker 10: But I understand, you know what they're dealing with. So we're going to have to get back, take a day and get back to everybody. But no, everyone wants to share. Even back then when you were shooting the film, everyone wanted to and wanted to share. And I think in many ways, because you know, like we just talked about this being called a suicide disease, that a lot of people are I mean, you know, you can't even me and you we don't deal with what they're dealing with. And we can't understand being in pain day and night.

42:20 Speaker 10: I mean, can you imagine stubborn your toe and the pain of that and having that day and night and now you take that and amplify that a hundred times where this is running through someone's body. We can't understand what that is, right. So I mean, when you think about that, and and people are thinking about, you know, maybe taking their own life, they want to share. There's a lot of people. I just I just had a young lady a few days ago send me a message and she contatacted me through WHAT'SPP. She said, Charles, I don't think I could do this anymore.

43:03 Speaker 10: And she's got I think two kids, and and I'm like, listen, just hang in. And you know she's got a fiance, her husband, and and.

43:12 Speaker 7: You know this is wow.

43:14 Speaker 10: I you know, words can't even express what what what they're dealing with and how we need to fight for this and this is why I fight for it because once you know, once again, if if if I don't, I don't know who will. Right Oh, thank god, I'm able to have the resources as far as getting the message out there and putting a good story together and so on and so forth. You know, I wish it was easier, you know, sometimes I you know, like I said, I'm banging my head trying to understand, you know, why it's so hard to be able to get a project like this together.

43:53 Speaker 10: But I, you know, I understand that this is the world we live in, and but we keep fighting. And when you know, hope. We were working on going to Italy to highlight some of the treatment that they have over there. So we've been talking to that clinic.

44:09 Speaker 12: Over there, and Italy has treatment that if administered early enough, it can halter or reverse or put into remission to our PS. I used to know a woman who had a fourteen year old daughter that took her to Italy for the treatment. It did work for a number of years, and then I guess it came back went back to Italy for an additional treatment. But it has to be done early, early, early, Like by the time we knew that I had CRPS. It was too late for that to work for me and to access it here in the United States.

44:46 Speaker 12: I don't think you can. I think it's impossible. It's not even like an option.

44:51 Speaker 10: For Yeah, I think it's only in Italy.

44:55 Speaker 12: People have mortgaged their houses to get you know, done anything to get their loved ones were there to try it. Yeah, yeah, And I'll just just have something to try. And I do want to say, I mean, this is a serious topic. It is difficult to talk about at times, but this is why you're done this documentary and why it's so important to talk about these documentaries and get that information out there. But if you are having any concerns, or you're not feeling too hot today, or you need some help, please remember you can dial nine eighty eight.

45:22 Speaker 12: Nine eight eight is the suicide and crisis Lifeline, and there are people there that can help you. So there's always a voice out there. Don't forget nine eighty eight.

45:32 Speaker 11: Yeah, yeah, yeah, absolutely, And I.

45:35 Speaker 10: Think too as well. Part of me, you know why, I fight too as well, because you never know what might be around the corner, and you want, you want folks to to to hang in there and hold out hope that maybe there is some treatment out there that that you know, I won't have to mortgage your house or fly across the world to get done. You know, hopefully there is something that that.

45:59 Speaker 12: Part of my is with you doing this. I have hope that maybe that gets some of the people up on Capitol Hill to pay attention and approve treatments that are working for people with c the RPS. But I do want to also bring up because Charles, you've done a lot of really great advocacy work, especially in the realm of the Forever Sick, and you've also done work in highlighting diabetes and type one diabetes and type two diabetes. I know you did a documentary series on that as well, and I wanted to make sure that our listeners heard about that.

46:34 Speaker 10: Yeah, yeah, yeah, We've done some great shows, and you know, we have the first docuseries we did doctor reality series was called a Verse. We shut that in Jamaica and featured you know, people living with diabetes. And I've done a documentary called The Diabetic You and a couple other projects on diabetes, and so it's been very powerful and you know, now that I'm even talking into you, i'd love to follow up once we get off to as well, because there probably is some other things that we could be doing, whether it's starting some sort of you know, online petition where we have you know, a few thousand people signs through things that could be you know, brought in front of some legislation or or some more awareness that maybe you could help me with and help the community get out there.

47:25 Speaker 10: So we can kind of make this more movement because we have to force the hands of these companies. We do, these pharmaceutical companies, we can just stay. They've got to open up their eyes and take account and at least, if nothing else, help support the people, whether it's even with treatment options.

47:50 Speaker 12: Oh exactly, look at what's happening now in our community. LOTOS snow track Zone is a medication that's working for a lot of people c RPS and small fiber in neuropathy, including myself. However, the pharmaceutical company that makes now trucks On won't make it in the low doses that people like us need it because it's not profitable for them. They only make it in the extremely high dose, so all of us have to go to compounding pharmacies to get the medication, which means we're paying one hundred percent out of pocket and it's not cheap, you know, and have it made that way because insurance gets to take a walk because it's compounded.

48:26 Speaker 12: Pharmaceutical company goes not enough money in that for us, So we're not going to make it, you know, and you're you know, you're left with either you know, no money, no med or whatever you're going to do to get the med yep exactly, Maybe maybe we need.

48:41 Speaker 10: To get a petition against or for that company, right so maybe they can open up their eyes and say, what is this? Who are these people? And and maybe take a different look at it. I think, you know, collectively is a community while it's a rare disease. I'm sure they're I don't know how what the number is, but CRPS people. But any petition with you know, fifty sixty to seventy thousand signatures might make that company say, you know what, we may need to take a look at this or at least address this in some form of fashion.

49:19 Speaker 11: Right right, exactly, exactly, Charles. It is already approaching the top of the hour. We need to begin to wrap up, but before we run out of time, I want to make sure the people know where to find the documentary Trial by Fire, and also too where they should go to find your other work, your other documentaries, and anything else that you want our listeners to know about how to keep up with everything that you're doing.

49:44 Speaker 10: Definitely, and I really appreciate this. My website is probably the best place. It's BELA and l eMedia dot com. B L l A A and d L e E l l eMedia dot com and you can always just google my name Charles Maddox. I'm not hard to find. Trial by Fire, like I said, is on YouTube right now, on my on my uh on one of my pages, the Future of Health Network. But probably will more directed toward the Amazon Prime so that we can really get people focused there. And who knows, maybe uh you know, with with some great views on Amazon Prime, they may be interested in in doing something bigger with us regarding CRPS and uh so we really want to push that initiative, and and and and for those who are listening, do remember that collectively, you know, as an army of people, we work better because we have to share.

50:46 Speaker 10: There's there are people who are literally just now seeing try by Fire after so many years, and we have to make sure that when we get this opportunity that we share, we share. We share, We ask our friends to share, we ask the friends of our friends to share. And even though at times a lot of us don't get the support that we would like, just keep pushing, just keep sharing, get the message out there. And I think if we work together at least we can cause some attention and some eyes to be put on on some things so that we can try to get some more help and resources out there.

51:27 Speaker 11: Yeah, absolutely, absolutely, all right. Well, Charles Maddox, thank you so much, my friend. It's wonderful to have you back on the show. Always great to speak with you, and we really love and appreciate what you're doing.

51:39 Speaker 10: And keep it up, man, keep it up, thanks so much, and have a good one.

51:45 Speaker 11: Absolutely, Charles, thank you. Take care about it all right. That was Charles Maddox, filmmaker and also a celebrity chef and actor. And he does a lot of stuff, by the way, Yeah, not just you know, obviously we're focused on the documentary with that conversation, but he's a busy guy. He's got a lot going on, so you should definitely check out everything that he's doing.

52:08 Speaker 12: Absolutely, and he and see I follow him all the time because he does so much in the chronic illness area and shine such a great light on it, especially with that series he did that serious he was talking about on diabetes is excellent and they talk about things that they do to you know, help stay healthier, diet and so forth. So it's it's good to have those conversations frankly, and Trial by Fire one hundred percent excellent movie to watch. If you haven't seen it, please see it, share it, help spread awareness.

52:38 Speaker 12: The more people that are aware and know, the more we can do to try and help them prevent people from losing their lives.

52:44 Speaker 11: Yep.

52:44 Speaker 12: Absolutely, and again I want to just remind people if you're having a hard day or you're needing someone to talk to, please remember nine eight eight is a great number you can call. You can find help and support there and no shame nine eight eight yep.

52:59 Speaker 11: Absolutely. All Right, while we are approaching the top of the hour, we're going to take a quick break, show some love to our amazing sponsors. Then when we come back, we're going to play the newest single from the band Ever Felt. It is called Reach, and then after that we will have Everfelt or at least I know Adam Steglitz is going to join us, and we'll see. We'll see if other band members are with him. I think the last time they were on, I think it was just Adam, but I'm not sure. But a great band from Chicago.

53:21 Speaker 11: If you haven't heard ever felt, definitely stick around, but we will be right back plenty more to come.

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